Latest updates for Hemophilia In Women

Fresh curated links around hemophilia in women are collected here so marketers can spot useful updates and turn timely ideas into posts faster.

Recent items include:

  • Many women with hemophilia-related mutations lack access to medical care
  • Finding strength and sisterhood through hemophilia advocacy
  • What to do during a bleeding emergency with hemophilia

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Recent curated links from global sources. Generate one free draft from any story, then use SocialBu to schedule and refine your content calendar.

hemophilianewstoday.com /4 weeks ago

Many women with hemophilia-related mutations lack access to medical care

Many women carrying hemophilia-related mutations are not receiving the medical attention they need, according to a large-scale multinational study. Despite being treated in establi...

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hemophilianewstoday.com /2 days ago

Finding strength and sisterhood through hemophilia advocacy

Tracye Hamler shares how her hemophilia diagnosis inspired her to create Free Bleeders and advocate for women with bleeding disorders through community, education, and visibility....

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hemophilianewstoday.com /4 days ago

What to do during a bleeding emergency with hemophilia

When you or someone you love has hemophilia, even what seems like a minor bleed can quickly become serious. Knowing how to recognize a bleeding emergency and what steps to take can...

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hemophilianewstoday.com /1 month ago

Most men with hem A bleed-free 5 years after 1 Roctavian dose

A single dose of the gene therapy Roctavian (valoctocogene roxaparvovec-rvox) continues to prevent bleeds and the need for preventive treatment (prophylaxis) for up to five years i...

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hemophilianewstoday.com /3 days ago

Sex and intimacy with hemophilia

Hemophilia can affect sex and intimacy in many ways, including your level of comfort, mobility, bleeding risk, and emotional closeness with a partner. If you’re living with hemophi...

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hemophilianewstoday.com /2 days ago

Hemophilia bleed or pain? How to tell when pain needs attention

When you have hemophilia, any new aches or pains can be a cause for concern. Because bleeding can happen in joints, muscles, and soft tissues, changes such as pain, swelling, or ti...

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hemophilianewstoday.com /1 week ago

Women are still navigating treatments that weren’t designed with us in mind

There are events I know I should attend but talk myself out of. The Bleeding Disorders Foundation of Florida’s special Ladies Tea Luncheon has often been one of them. It’s not beca...

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hemophilianewstoday.com /1 month ago

Confident protection from hemophilia A

The post Confident protection from hemophilia A appeared first on Hemophilia News Today.

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hemophilianewstoday.com /3 weeks ago

I never got the chance to ask my mom about hemophilia in our family

Certain moments stay with me forever. I remember walking down the church aisle with my dad toward my future spouse, the scent of my babies when I first held them, and the bishop’s...

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hemophilianewstoday.com /4 days ago

Hemophilia patients still face unmet health needs despite treatment

People with hemophilia still experience significant unmet health needs despite receiving preventive treatment, according to an international study. “Despite current treatment, many...

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hemophilianewstoday.com /3 days ago

How to prepare for surgery with hemophilia

Preparing for surgery with a bleeding disorder like hemophilia often involves extra coordination, but many procedures can still be done safely with the right precautions. Because h...

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hemophilianewstoday.com /1 week ago

Prophylaxis and on-demand treatment for hemophilia: How doctors decide

After a hemophilia diagnosis, people typically work with their care team to develop a tailored treatment plan. This will likely involve considering both preventive (prophylactic) a...

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hemophilianewstoday.com /1 week ago

Data show hemophilia bleeds can be successfully treated while on Hympavzi

In the large clinical trial that supported the 2024 approval of Hympavzi (marstacimab) for adults and children with hemophilia, use of the prophylactic injection therapy was found...

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hemophilianewstoday.com /1 week ago

Sports and physical activity for children with hemophilia

Running, climbing, or joining a team sport are important parts of growing up for many children. If your child is living with hemophilia, those experiences do not necessarily have t...

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hemophilianewstoday.com /1 month ago

With factor IX deficiency, saying I have ‘hemophilia’ isn’t specific enough

In recent years, I’ve found myself simplifying my diagnosis in medical settings by saying I have a bleeding disorder. It’s the simplest way to explain what is actually a combinatio...

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hemophilianewstoday.com /1 week ago

Our toolkit for living with hemophilia is bigger than a medical bag

When people think about hemophilia, it’s likely they usually think about clotting factor, infusions, bleeds, emergency rooms, and hospital visits. And yes, those things matter — a...

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hemophilianewstoday.com /1 day ago

WHO members adopt global resolution on bleeding disorder care

At the World Health Assembly (WHA), member states of the World Health Organization (WHO) unanimously adopted a resolution on Global Action to Advance Health Equity for People with...

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podiatryarena.com /1 week ago

Haemophilia and the foot

Hi guys, Doing a talk soon to a haemophilia society and just wondering if anybody has and useful links or info on haemophilia and it's effect on the foot? Kind regards, Sa...

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hemophilianewstoday.com /1 week ago

Deciding when to tell people about my hemophillia

I once arrived late to an event and offered no explanation. I’d been standing at my door, ready to go, when I realized I needed to infuse factor VIII before I could proceed safely....

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hemophilianewstoday.com /1 month ago

FX activator may help with bleeding control in hemophilia A and B: Trials

Bemiltenase alfa, an experimental factor X (FX) activator, helped with on-demand bleeding control for people with hemophilia A and B who had developed inhibitors against standard f...

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hemophilianewstoday.com /2 weeks ago

Hympavzi now approved for more hemophilia patients in Europe

The European Commission has approved Hympavzi (marstacimab) to treat certain people with hemophilia A or hemophilia B who have inhibitors, the therapy’s maker, Pfizer, announced. H...

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hemophilianewstoday.com /2 weeks ago

Advanced joint disease alters how hemophilia patients walk: Study

People with hemophilia, particularly those with more advanced joint disease, or hemophilic arthropathy, show altered walking patterns likely linked to reduced ankle mobility, a new...

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hemophilianewstoday.com /1 week ago

Real-world study backs safety of Hemlibra for acquired hemophilia A

Hemlibra (emicizumab) alongside immunosuppressive therapy appears safe for use in acquired hemophilia A (AHA), according to initial results of a real-world study in Japan, the only...

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Sources covering Hemophilia In Women

hemophilianewstoday.com

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podiatryarena.com

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News Columns treatment Hemophilia and Me – a Column by Jennifer Lynne Hympavzi diagnosis hemophilia A hemophilia B hemophilia in women HEMLIBRA HemoWife - a Column by Allyx Formalejo Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

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