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Hemophilia A, a genetic bleeding disorder, is often underdiagnosed in women because of the historical misconception that it affects only men due to its inheritance pattern. While w...
In recent years, there has been a massive shift in the understanding that female hemophilia carriers can indeed have the condition themselves. Fellow Hemophilia News Today columnis...
Hemophilia A is a rare inherited bleeding disorder and the most common type of hemophilia, accounting for about 80% of cases. It is caused by mutations in the F8 gene that lead to...
Hemophilia A, the most common type of hemophilia, is a bleeding disorder that is inherited in an X-linked, recessive manner. This is because the F8 gene, which can cause hemophilia...
The Haemophilia Joint Health Score (HJHS), a standard tool used to assess joint health in people with bleeding disorders, including hemophilia, may underestimate joint damage, or h...
A proposed bill in the U.S. House of Representatives — one dubbed the FED UP Act for short — is aiming to reduce barriers to care for women and girls with bleeding disorders, inclu...
Hemophilia A is a bleeding disorder caused by a deficiency in the blood-clotting factor VIII (FVIII) protein. Standard treatment usually relies on factor replacement therapy, which...
Tracye Hamler shares how her hemophilia diagnosis inspired her to create Free Bleeders and advocate for women with bleeding disorders through community, education, and visibility....
Queen Victoria, who ruled Britain from 1837 to 1901 and became one of the most recognisable monarchs in modern history, had nine children. By the time she died in 1901, her descend...
An experimental prenatal cell and gene therapy designed to restore production of the missing clotting protein in hemophilia A showed maternal safety signs in a U.S. study in sheep....
For couples affected by hemophilia who want to avoid passing the inherited bleeding disorder to their children, early genetic testing — done during the in vitro fertilization (IVF)...
When you or someone you love has hemophilia, even what seems like a minor bleed can quickly become serious. Knowing how to recognize a bleeding emergency and what steps to take can...
Hemophilia can affect sex and intimacy in many ways, including your level of comfort, mobility, bleeding risk, and emotional closeness with a partner. If you’re living with hemophi...
When you have hemophilia, any new aches or pains can be a cause for concern. Because bleeding can happen in joints, muscles, and soft tissues, changes such as pain, swelling, or ti...
There are events I know I should attend but talk myself out of. The Bleeding Disorders Foundation of Florida’s special Ladies Tea Luncheon has often been one of them. It’s not beca...
In a small study, children with hemophilia A had distinct changes in certain immune cells and inflammatory signaling molecules compared with healthy children, and the type of preve...
People with hemophilia still experience significant unmet health needs despite receiving preventive treatment, according to an international study. “Despite current treatment, many...
Preparing for surgery with a bleeding disorder like hemophilia often involves extra coordination, but many procedures can still be done safely with the right precautions. Because h...
After a hemophilia diagnosis, people typically work with their care team to develop a tailored treatment plan. This will likely involve considering both preventive (prophylactic) a...
In the large clinical trial that supported the 2024 approval of Hympavzi (marstacimab) for adults and children with hemophilia, use of the prophylactic injection therapy was found...
Running, climbing, or joining a team sport are important parts of growing up for many children. If your child is living with hemophilia, those experiences do not necessarily have t...
When people think about hemophilia, it’s likely they usually think about clotting factor, infusions, bleeds, emergency rooms, and hospital visits. And yes, those things matter — a...
At the World Health Assembly (WHA), member states of the World Health Organization (WHO) unanimously adopted a resolution on Global Action to Advance Health Equity for People with...
For most of my life, “tired” was the only word I had, and it was never enough. I’d say it to doctors the way you’d mention the weather — a fact so ordinary it wasn’t worth writing...
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