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Running, climbing, or joining a team sport are important parts of growing up for many children. If your child is living with hemophilia, those experiences do not necessarily have t...
In a small study, children with hemophilia A had distinct changes in certain immune cells and inflammatory signaling molecules compared with healthy children, and the type of preve...
Hemophilia A is a rare inherited bleeding disorder and the most common type of hemophilia, accounting for about 80% of cases. It is caused by mutations in the F8 gene that lead to...
Children with severe hemophilia B who develop antibodies, also known as inhibitors, against coagulation factor IX (FIX) replacement therapies continue to face major treatment chall...
Hemophilia A, a genetic bleeding disorder, is often underdiagnosed in women because of the historical misconception that it affects only men due to its inheritance pattern. While w...
Brothers Julian and Caeleb MacDonald share how growing up with severe hemophilia A shaped their experiences, family dynamics, and sibling relationship, while emphasizing that their...
When you or someone you love has hemophilia, even what seems like a minor bleed can quickly become serious. Knowing how to recognize a bleeding emergency and what steps to take can...
When you have hemophilia, any new aches or pains can be a cause for concern. Because bleeding can happen in joints, muscles, and soft tissues, changes such as pain, swelling, or ti...
Hemophilia A is a bleeding disorder caused by a deficiency in the blood-clotting factor VIII (FVIII) protein. Standard treatment usually relies on factor replacement therapy, which...
If you’re raising a child with hemophilia, I understand the fear. It starts early — before sports, sleepovers, and field trips, and often before they’re old enough to understand th...
Preparing for surgery with a bleeding disorder like hemophilia often involves extra coordination, but many procedures can still be done safely with the right precautions. Because h...
The swimming pool was the best place to be for a young girl growing up in the hot Texas summers. I’d hand over my crumpled dollar at the counter and spend the whole day there. Afte...
For couples affected by hemophilia who want to avoid passing the inherited bleeding disorder to their children, early genetic testing — done during the in vitro fertilization (IVF)...
Hemophilia A, the most common type of hemophilia, is a bleeding disorder that is inherited in an X-linked, recessive manner. This is because the F8 gene, which can cause hemophilia...
In the large clinical trial that supported the 2024 approval of Hympavzi (marstacimab) for adults and children with hemophilia, use of the prophylactic injection therapy was found...
After a hemophilia diagnosis, people typically work with their care team to develop a tailored treatment plan. This will likely involve considering both preventive (prophylactic) a...
People with hemophilia still experience significant unmet health needs despite receiving preventive treatment, according to an international study. “Despite current treatment, many...
I never thought my life would be like this, but as a mother, I had no choice but to be strong for my children. As a mother of two sons with severe hemophilia A, Lean Archer and Luk...
For teenagers and their parents, transitioning to adult care with hemophilia can feel like a big step toward independence. It may also feel overwhelming at times. The hemophilia tr...
When I was in the fifth grade, I’d look in the mirror every morning and hate who I saw. I believed I was ugly, unpopular, and weird, and the hand-me-down clothes I wore made me loo...
When people think about hemophilia, it’s likely they usually think about clotting factor, infusions, bleeds, emergency rooms, and hospital visits. And yes, those things matter — a...
What counts as normal bruising in active boys? Bruises become more common when children start crawling, walking, and running. They often appear on bony areas that take the most bum...
Maria de Guzman shares how caring for her two sons with severe hemophilia A has shaped her life, from learning to manage bleeds and prevent injuries to finding strength through com...
Bringing hemophilia care home might feel both freeing and a little frightening. However, with the right training and support, hemophilia self-infusion can quickly become a normal a...
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