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Practical school accommodations can help children with hemophilia stay safe, and feel included and supported in the classroom, in PE, and on field trips. The post School accommodat...
Running, climbing, or joining a team sport are important parts of growing up for many children. If your child is living with hemophilia, those experiences do not necessarily have t...
Before I ever met my husband, Jared, he had learned to adapt well to having severe hemophilia B and seizures. But one moment from his childhood still finds its way back to him. On...
When you or someone you love has hemophilia, even what seems like a minor bleed can quickly become serious. Knowing how to recognize a bleeding emergency and what steps to take can...
When you have hemophilia, any new aches or pains can be a cause for concern. Because bleeding can happen in joints, muscles, and soft tissues, changes such as pain, swelling, or ti...
Preparing for surgery with a bleeding disorder like hemophilia often involves extra coordination, but many procedures can still be done safely with the right precautions. Because h...
Preventive treatment with Hemlibra (emicizumab) is associated with better bleeding control and lower medication costs compared with immune tolerance induction, or ITI, among childr...
The post Confident protection from hemophilia A appeared first on Hemophilia News Today.
In the large clinical trial that supported the 2024 approval of Hympavzi (marstacimab) for adults and children with hemophilia, use of the prophylactic injection therapy was found...
After a hemophilia diagnosis, people typically work with their care team to develop a tailored treatment plan. This will likely involve considering both preventive (prophylactic) a...
People with hemophilia still experience significant unmet health needs despite receiving preventive treatment, according to an international study. “Despite current treatment, many...
I never thought my life would be like this, but as a mother, I had no choice but to be strong for my children. As a mother of two sons with severe hemophilia A, Lean Archer and Luk...
For teenagers and their parents, transitioning to adult care with hemophilia can feel like a big step toward independence. It may also feel overwhelming at times. The hemophilia tr...
When I was in the fifth grade, I’d look in the mirror every morning and hate who I saw. I believed I was ugly, unpopular, and weird, and the hand-me-down clothes I wore made me loo...
When people think about hemophilia, it’s likely they usually think about clotting factor, infusions, bleeds, emergency rooms, and hospital visits. And yes, those things matter — a...
What counts as normal bruising in active boys? Bruises become more common when children start crawling, walking, and running. They often appear on bony areas that take the most bum...
Many women carrying hemophilia-related mutations are not receiving the medical attention they need, according to a large-scale multinational study. Despite being treated in establi...
Certain moments stay with me forever. I remember walking down the church aisle with my dad toward my future spouse, the scent of my babies when I first held them, and the bishop’s...
Hemophilia can affect sex and intimacy in many ways, including your level of comfort, mobility, bleeding risk, and emotional closeness with a partner. If you’re living with hemophi...
People with hemophilia, particularly those with more advanced joint disease, or hemophilic arthropathy, show altered walking patterns likely linked to reduced ankle mobility, a new...
Thomas Graham shares how lingering pain and joint damage continue to affect quality of life long after bleeds are treated. The post The lasting impact of pain in hemophilia care ap...
Regular and sustained physical exercise — including aerobic activities, strength training, and balance exercises — may help ease chronic pain, improve physical performance, and enh...
Watching gymnasts Nadia Comaneci and Olga Korbut in the 1976 Olympic Games inspired me to do front rolls in my backyard. I knew back flips and aerial twirls weren’t in my reach, so...
Hi guys, Doing a talk soon to a haemophilia society and just wondering if anybody has and useful links or info on haemophilia and it's effect on the foot? Kind regards, Sa...
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