Latest updates for Children With Hemophilia

Fresh curated links around children with hemophilia are collected here so marketers can spot useful updates and turn timely ideas into posts faster.

Recent items include:

  • Tonsil, adenoid surgery safe for hemophilia kids if plan is in place
  • Hemophilia symptoms
  • Preventive treatment cuts bleeding rates in children with hemophilia A

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Recent curated links from global sources. Generate one free draft from any story, then use SocialBu to schedule and refine your content calendar.

hemophilianewstoday.com /3 weeks ago

Tonsil, adenoid surgery safe for hemophilia kids if plan is in place

Children with hemophilia who underwent surgery to remove the tonsils or adenoids experienced almost no bleeding complications when surgeons followed a structured bleeding managemen...

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hemophilianewstoday.com /2 weeks ago

Hemophilia symptoms

Hemophilia is a rare disorder in which the blood doesn’t clot properly, resulting in the disease’s hallmark symptoms of bleeds — excessive bleeding that extends over a prolonged pe...

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hemophilianewstoday.com /2 weeks ago

Preventive treatment cuts bleeding rates in children with hemophilia A

Routine preventive, or prophylactic, treatment reduces bleeding rates in children with severe hemophilia A, regardless of whether prophylaxis is started before or after significant...

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hemophilianewstoday.com /1 month ago

Hemophilia A treatment

There is no cure for hemophilia A, but several treatments are available to help prevent and control bleeds, reduce the risk of complications, and improve quality of life. People wi...

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hemophilianewstoday.com /1 month ago

Hemophilia A in women

Hemophilia A, a genetic bleeding disorder, is often underdiagnosed in women because of the historical misconception that it affects only men due to its inheritance pattern. While w...

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hemophilianewstoday.com /2 weeks ago

Hemophilia B Leyden

Hemophilia B Leyden (HBL) is a rare subtype of hemophilia B, a genetic bleeding disorder characterized by the lack of a blood clotting protein called factor IX (FIX). For most peop...

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hemophilianewstoday.com /2 weeks ago

Our approach to talking with children about being a hemophilia carrier

Recently, my husband, Jared, and I asked our 7-year-old daughter what she knew about being a hemophilia carrier. It wasn’t a serious family meeting. There was no carefully prepared...

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hemophilianewstoday.com /4 weeks ago

Hemophilia As an Inherited Disorder

Inside hemophilia genetics, such as F8 and F9 mutations, inheritance patterns, and de novo variants. Plus, evolving approaches to females with hemophilia. The post Hemophilia As an...

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hemophilianewstoday.com /1 day ago

Interviews highlight caregiver burden for hemophilia families

Caring for a child with hemophilia can bring emotional strain and disrupt family life even as advances in treatment make it easier to manage the disease, a study in the Netherlands...

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hemophilianewstoday.com /1 month ago

Factor VIII replacement therapy for hemophilia A

Factor VIII (FVIII) replacement therapy is a cornerstone of treatment for many people with hemophilia A, a rare bleeding disorder caused by deficient or dysfunctional FVIII, a prot...

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hemophilianewstoday.com /4 weeks ago

Common mistakes in treating hemophilia bleeds

Shannon Walker, MD, discusses the importance of promptly treating acute hemophilia bleeds, sometimes before imaging is completed. The post Common mistakes in treating hemophilia bl...

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hemophilianewstoday.com /1 month ago

Early genetic testing may ensure babies are born hemophilia-free

For couples affected by hemophilia who want to avoid passing the inherited bleeding disorder to their children, early genetic testing — done during the in vitro fertilization (IVF)...

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hemophilianewstoday.com /1 month ago

Bleeding Response in Hemophilia

A look at how FVIII/FIX deficiency contributes to variable disease severity and provides the biologic foundation for modern hemophilia therapies. The post Bleeding Response in Hemo...

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hemophilianewstoday.com /4 weeks ago

Management Challenges in Hemophilia: From Delayed Bleeding to Chronic Injury

Factor deficiencies can disrupt clot formation, causing bleeding complications, arthropathy, the development of inhibitors, and long-term disease burden. The post Management Challe...

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hemophilianewstoday.com /6 days ago

What my sons wish people understood about hemophilia, part 1

First in a series. This morning, my oldest son, Julian, 30, called me from Philadelphia, where he is living for two months before packing up his bags and moving again. He is a prof...

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hemophilianewstoday.com /1 month ago

Many women with hemophilia face heavy symptoms and care gaps

Although it’s often mistakenly thought of as a male disease, hemophilia affects a substantial number of women and girls, manifesting with symptoms that can include heavy menstrual...

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hemophilianewstoday.com /5 days ago

Add-on therapy may speed immune tolerance in children with hemophilia A

In children with severe hemophilia A who are undergoing treatment to remove inhibitors, adding Hemlibra (emicizumab-KXWH) was associated with faster immune tolerance and fewer trea...

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hemophilianewstoday.com /4 weeks ago

Hemophilia Management: Emergency Stabilization and Long-Term Strategies

From acute bleeds and inhibitor considerations to long-term approaches. The post Hemophilia Management: Emergency Stabilization and Long-Term Strategies appeared first on Hemophili...

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hemophilianewstoday.com /1 month ago

There’s no dress rehearsal for raising children with hemophilia

My oldest son, Julian, is a working actor in a touring production. For this show, he is trained to perform both male lead roles. Over the last six months, he performed one role, an...

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hemophilianewstoday.com /4 weeks ago

When the hands-on hemo mom hears, ‘Don’t worry. I’ve got this.’

My son Caeleb recently had his wisdom teeth removed. Caeleb has severe hemophilia A with an inhibitor, but hemophilia hasn’t been the main focus in his life for years. Nevertheless...

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hemophilianewstoday.com /2 weeks ago

Rebinyn (nonacog beta pegol) for hemophilia

Rebinyn (nonacog beta pegol) is a recombinant factor IX concentrate used to prevent and treat bleeds, including those occurring during surgery, in children and adults with hemophil...

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hemophilianewstoday.com /1 week ago

Nutrition in hemophilia

Diet is not a cure for hemophilia, nor can it prevent bleeding episodes. However, maintaining good nutrition in hemophilia can support blood cell recovery, promote healthy weight m...

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hemophilianewstoday.com /3 weeks ago

Diet and nutrition for hemophilia A: Foods for bone and joint health

Nutrition is an important part of managing hemophilia A. While diet can’t prevent bleeding episodes, eating a balanced diet can support your bone and joint health, help you maintai...

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hemophilianewstoday.com /2 weeks ago

Encountering people who don’t understand my son’s hemophilia

Many years ago, my family attended the National Bleeding Disorders Foundation’s Bleeding Disorders Conference. My youngest son, Caeleb, was 8 at the time. Due to his hemophilia, he...

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