Latest updates for Patient Stories

Fresh curated links around Patient Stories are collected here so marketers can spot useful updates and turn timely ideas into posts faster.

Recent items include:

  • The human side of clinical trials that no data captures
  • Patient experience spotlight: Cassandra Neely
  • A Trial of ICU Care: a true end-of-life story

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Fresh articles and ideas

Recent curated links from global sources. Generate one free draft from any story, then use SocialBu to schedule and refine your content calendar.

kevinmd.com /1 month ago

The human side of clinical trials that no data captures

There are patients you remember for their diagnosis. And then there are patients you remember for who they were. He was the second kind. Years ago, during my time in oncology clini...

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akronchildrens.org /4 days ago

Patient experience spotlight: Cassandra Neely

Every month, Akron Children’s recognizes an employee for providing an exceptional patient experience. Our most recent honoree is Cassandra (Cassie) Neely, phlebotomy trainer. She r...

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betterhealthwhileaging.net /1 month ago

A Trial of ICU Care: a true end-of-life story

In another post, I’ve shared the story of Mrs. F, a very ill older woman with cancer who said she didn’t want to go to the hospital, even though she wasn’t on hospice. Now, I want...

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stuff.co.nz /1 month ago

‘Our emergency issue’: Got an ED story to share? Paddy Gower and Paula Penfold want to hear it

From corridor care and long waits to lifesaving treatment, we want your stories.

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akronchildrens.org /1 month ago

Patient experience spotlight: Dr. Christopher Costin

Every month, Akron Children’s celebrates an employee for providing an outstanding patient experience. Our most recent honoree is Dr. Christopher Costin, a pediatric rheumatologist....

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akronchildrens.org /1 month ago

From routine checkup to recovery: Following Raegan’s neuroblastoma journey

When Raegan Glendon’s parents took her to a routine 15-month well visit, they expected to hear she was healthy and thriving. At first, that seemed true. “Neither we nor our pediatr...

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lex18.com /1 month ago

Kentucky nurse diagnosed with rare appendix tumor urges patients to advocate for themselves

For more than 30 years, Vivian Morgan has cared for others as a nurse. Earlier this year, she became the patient.

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akronchildrens.org /3 weeks ago

A routine physical uncovers an unexpected cancer diagnosis

Chris Carosielli would be the first to tell you that having her 19-year-old daughter, Ava, diagnosed with cancer just a few months after high school graduation wasn’t on her bingo...

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kevinmd.com /2 weeks ago

A medical home pioneer meets fragmented care as a patient

For years, I spoke about the importance of coordinated care. Long before the term became fashionable, I helped build what would later become known as a medical home at Minot Air Fo...

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akronchildrens.org /1 week ago

After a kitchen burn, mom sees Akron Children’s in a new light

Allison Dennison of North Canton has taken her three kids to Akron Children’s for everything from primary and specialty visits to emergency care. She never expected that, one day,...

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kevinmd.com /1 month ago

Clinical trial retention starts with a kind conversation

Patients may not remember every lab draw, procedure, or study visit. But they will remember how they felt. One of the greatest privileges of working in clinical research for more t...

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thecentersquare.com /3 weeks ago

Wisconsin senator’s roundtable spotlights COVID patients’ battles over medical care

(The Center Square) – While many members of Congress are home campaigning for the midterms, Wisconsin U.S. Sen. Ron Johnson held a roundtable Monday featuring doctors, patients and...

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qchron.com /1 week ago

The Road to Diagnosis: Cindy’s Journey With Non-Cystic Fibrosis Bronchiectasis

(StatePoint) Cindy has always been active. As a physical education teacher, and later an elementary school principal, she built her career around helping others lead healthy, fulfi...

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hospitalsmagazine.com /1 month ago

How the stars aligned for CeCe’s spinal cord tumor care

Last spring, 6-year-old CeCe was on vacation when she told her parents, Mike and Mary, that her neck hurt. After the family returned home, her neck pain persisted — and she develop...

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goodmenproject.com /1 month ago

A Doctor-Patient Perspective: How to Combat Stigma Against Rare Diseases

In medical school, students routinely examine one another to practice clinical skills before applying them in real-world settings. The post A Doctor-Patient Perspective: How to Com...

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healthywomen.org /2 weeks ago

After Being Diagnosed With Ehlers-Danlos Syndrome at 46, I Quit My Job and Took a Leap of Faith to Open a Cooking School...

As told to Aileen WeintraubGrowing up in New Orleans, everyone thought I was cool because I was double-jointed. I could flip my tongue around and slip my arm out of its socket. It...

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kevinmd.com /1 month ago

Medical gaslighting delayed my diagnosis by 20 years

This is dedicated to my fellow Zebras. I hear you. I see you. This is not an easy story to share, but I want to do so in the hope of bringing greater visibility to conditions that...

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kevinmd.com /5 days ago

A diagnosis no one authored can follow your patient from visit to visit [PODCAST]

Listen and followApple PodcastsSpotifyYouTubeMore apps · Browse all episodes A patient arrives already sure of what is wrong with them. The words they use came from somewhere else....

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pharmexec.com /3 days ago

<![CDATA[Finding the Few: Combining Clinical Insight, Data and Media to Reach Patients with Rare Diseases]]>

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kevinmd.com /3 weeks ago

The patient’s story has no place in the electronic record

About 80 percent of a diagnosis comes from the patient’s story. The electronic health record has no place to keep it. I learned the first half of that in my second year of medical...

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academyhealth.org /5 days ago

The Evidence Effect: Four Stories That Show How Research Improves Lives

The Evidence Effect: Four Stories That Show How Research Improves Lives How do we know when research makes a difference?Sometimes it helps more mothers access care after c...

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nwitimes.com /1 month ago

Powers Health cancer patient undergoing pelvic therapy

William Busch felt a hard lump on his abdomen during a business trip, thought he pulled a muscle and discovered he had lesions on his liver.

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kevinmd.com /2 weeks ago

Living with glycogen storage disease into adulthood

Both Julieta and Rob went through long, uncertain paths to receiving a correct diagnosis. Julieta was born in 1987 outside a major city in Argentina. Very little information about...

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painnewsnetwork.org /1 week ago

How a Professional Advocate Can Help Patients

By Jennifer Schlinger Imagine your mom has just been discharged from the hospital to a rehabilitation center after hip replacement surgery. She has the paperwork, the facility’s ad...

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Sources covering Patient Stories

academyhealth.org

Recent coverage from public sources
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betterhealthwhileaging.net

Recent coverage from public sources
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feeds.feedburner.com

Recent coverage from public sources
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feeds.feedburner.com

Recent coverage from public sources
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goodmenproject.com

Recent coverage from public sources
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healthywomen.org

Recent coverage from public sources
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