Latest updates for Malaysian Rare Disorders Society

Fresh curated links around Malaysian Rare Disorders Society are collected here so marketers can spot useful updates and turn timely ideas into posts faster.

Recent items include:

  • Hear Our Heartbeat Brings Patients, Clinicians and Advocates Together to Spotlight Under-Recognised Heart Condition ATTR
  • Health Ministry drafting national registry for persons with disabilities to improve service planning
  • Johor Teen’s Transverse Myelitis: A Mother’s Search for Answers

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story.motherhood.com.my /2 weeks ago

Hear Our Heartbeat Brings Patients, Clinicians and Advocates Together to Spotlight Under-Recognised Heart Condition ATTR...

Cardiologists, patients, carers and the Malaysian Rare Disorders Society (MRDS) came together today for Dengarlah Degupan Kami (Hear Our Heartbeat), a forum convened by... The post...

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malaymail.com /2 weeks ago

Health Ministry drafting national registry for persons with disabilities to improve service planning

SHAH ALAM, Oct 10 — The Ministry of Health (MOH), through its Family Health Development Division’s Persons w...

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story.motherhood.com.my /3 weeks ago

Johor Teen’s Transverse Myelitis: A Mother’s Search for Answers

When her 13-year-old son suddenly lost movement in his legs, JoVin Hui faced a frightening search for answers. In a Facebook post shared in... The post Johor Teen’s Transverse Myel...

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malaymail.com /1 month ago

Malaysian Armed Forces plans special-needs child centres at major military camps

KUALA LUMPUR, Sept 18 — The Malaysian Armed Forces (MAF) aims to establish at least one Community Rehabilitation C...

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malaymail.com /1 month ago

‘Malaysia, Jom Check!’: Free health screenings for STR recipients aged 40 and up

KUALA LUMPUR, Sept 3 — ProtectHealth Corporation Sdn Bhd (ProtectHealth) under the Ministry of Health (MOH) is off...

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malaymail.com /1 month ago

Malaysia sends families’ DNA samples to Nepal to help identify 55 missing Malaysians, says Tok Mat

SEREMBAN, Sept 5 — All DNA samples from the next-of-kin of 55 Malaysians still unaccounted for following floods an...

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malaymail.com /1 month ago

Nepal tragedy: Support group seeks Tamil counsellors for victims’ families

KUALA LUMPUR, Sept 4 — Solidariti Malaysia: Keluarga Dalam Harapan (MASFIH), a support group for families of victi...

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malaymail.com /1 month ago

As parents age, Malaysia must plan for neurodivergent adults too, says Nancy Shukri

KUALA LUMPUR, Sept 22 — Planning for neurodivergent individuals must extend beyond childhood intervention to cover...

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malaymail.com /1 month ago

Malaysia records 102 deceased organ donors so far in 2026, but 12,575 still await transplants, says MOH

KUALA TERENGGANU, Sept 19 — The Ministry of Health (MOH) recorded 102 deceased organ donors from January to August...

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malaymail.com /2 weeks ago

Jelutong MP urges govt to provide financial assistance to families of Malaysians missing in Nepal floods

KUALA LUMPUR, Oct 8 — The government has been urged to consider providing financial assistance to all Malaysian fa...

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amrc.org.uk /1 month ago

SarcoidosisUK

https://www.sarcoidosisuk.org/ Twitter: @SarcoidosisUK

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malaymail.com /1 month ago

Fadhlina urges parents to screen children early for autism, ADHD and learning difficulties

 GUA MUSANG, Sept 15 — The Ministry of Education (MOE) is encouraging parents to bring their children for scr...

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malaymail.com /1 month ago

Foreign Ministry seeks DNA samples of Nepal flood victims to identify missing Malaysians

KUALA LUMPUR, Sept 12 — Malaysia is reportedly in talks with Nepal to have DNA samples from flood victims found du...

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malaymail.com /3 weeks ago

Family spokesman: Malaysia sought wider Nepal search for 55 uncontactable citizens, but access was limited

PUTRAJAYA, Sept 27 — Malaysia initially requested that the search and rescue (SAR) operation involving 55 Malaysia...

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podiatryarena.com /1 week ago

Charcot Marie Tooth Disease

Does anybody out there have any information on who I can refer a patient to for diagnosis of Charcot Marie Tooth disorder in Melbourne area? Is there an association or neurologist...

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dohanews.co /1 month ago

Malaysian community in Qatar marks National Day celebration with indoor walkathon

The Malaysian Association of Qatar [MAQ] brought members of the Malaysian community together for a five-kilometre walkathon at Doha Festival City on Friday morning, as the country...

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malaymail.com /3 weeks ago

Malaysian listed as ‘uncontactable’ after Nepal floods returns home safely, 54 still missing

PUTRAJAYA, Oct 3 — A Malaysian previously reported as uncontactable following floods and landslides in Nepal has r...

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malaymail.com /1 month ago

Families of missing Malaysians request detailed SAR briefings in Nepal tragedy as SMART prepares to return

KUALA LUMPUR, Sept 14 — The family of N. Kalaiselvi, a Malaysian reported missing in the Nepal landslide tragedy,...

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malaymail.com /1 week ago

Unregistered Orang Asli in Malaysia: Why the NRD struggles to find accurate numbers

GUA MUSANG, Oct 13 — The absence of accurate numbers of individuals without identification documents poses a chall...

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malaymail.com /1 month ago

Families of three missing Malaysians in Nepal hope for good news on their safety

KUALA LUMPUR, Aug 30 — The families and friends of three Malaysian climbers reported missing following a flash flo...

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amrc.org.uk /1 week ago

Medical Research UK

www.medicalresearchuk.org LinkedIn: Medical Research UK Primary research areas Generic health relevance; Cancer; Child health; Congenital disorders; Ear; Eye; Infection;...

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malaymail.com /3 weeks ago

Families of 55 missing Malaysians return to Wisma Putra for latest Nepal search update

PUTRAJAYA, Sept 27 — Family members of the 55 Malaysians who remain missing following the glacial flash flood inci...

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malaymail.com /1 month ago

Wisma Putra launches round-the-clock effort to trace 57 Malaysians after Nepal disaster

KUALA LUMPUR, Aug 28 — Fifty-seven Malaysians are currently uncontactable following devastating floods in Nepal&rs...

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malaymail.com /1 month ago

MAG says mass drug screenings for Malaysia Airlines crew near 100pc

KUALA LUMPUR, Sept 4 — Malaysia Aviation Group (MAG) has completed drug screenings for nearly all Malaysia Airline...

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Sources covering Malaysian Rare Disorders Society

dohanews.co

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podiatryarena.com

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story.motherhood.com.my

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amrc.org.uk

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malaymail.com

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