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When I first started writing for Hemophilia News Today in 2018, I never imagined it would become part of my career. At the time, I was a young woman preparing for marriage and tryi...
When people think about hemophilia, it’s likely they usually think about clotting factor, infusions, bleeds, emergency rooms, and hospital visits. And yes, those things matter — a...
Lately, I’ve been seeing a trend on social media where people ask artificial intelligence (AI) tools to write them a letter. Usually, the prompts are deeply personal. People ask fo...
Every June, my social media feeds fill with rainbows. My LGBTQ+ friends celebrate Pride Month, while others share deeply personal stories about identity, belonging, and acceptance....
I’ve noticed something strange over the years: Adults with hemophilia sometimes disappear from conversations that were built for them. I first noticed it in support groups. The lou...
Someone recently told me they thought they were experiencing arrival fallacy. I’d heard the term before. It describes the feeling of reaching a long-awaited goal, only to discover...
I rarely participate in support groups on social media because some interactions leave me feeling more emotionally drained than supported. To be clear, there are genuinely kind and...
If you’re raising a child with hemophilia, I understand the fear. It starts early — before sports, sleepovers, and field trips, and often before they’re old enough to understand th...
I don’t usually ask myself whether I want something. I ask whether I can justify wanting it. Is it practical? Financially responsible? Useful enough? Meaningful enough? Will I regr...
I woke up on Saturday morning and struggled to stand upright. My back had given out, and I could hardly take a step forward. Sunday morning was no better, but I had to prepare for...
I never thought my life would be like this, but as a mother, I had no choice but to be strong for my children. As a mother of two sons with severe hemophilia A, Lean Archer and Luk...
At work, I’m the second-oldest on my team. With our ages ranging from mid-20s to early 50s, we each bring different life experiences. I’m always interested in hearing the Gen Z and...
Maria de Guzman shares how caring for her two sons with severe hemophilia A has shaped her life, from learning to manage bleeds and prevent injuries to finding strength through com...
Tracye Hamler shares how her hemophilia diagnosis inspired her to create Free Bleeders and advocate for women with bleeding disorders through community, education, and visibility....
My sons, Julian and Caeleb, were both diagnosed with hemophilia as babies. Although they’re 10 years apart, each diagnosis was overwhelming and affected my wife, Cazandra, and me d...
I’ve been standing in front of my closet longer than I’d like to admit. It’s not vanity. It’s because I know what I want the clothes to do: I want to walk into a marble hallway and...
I grew up in a mostly white suburb of Houston. My dad, who was of Mexican descent and had dark skin, spoke English as his second language. He worked hard, went to school, and earne...
Having severe hemophilia A means everything can be life-threatening. In February, I had a tooth extraction that required sedation, after a year of preparation. It took that long be...
I once arrived late to an event and offered no explanation. I’d been standing at my door, ready to go, when I realized I needed to infuse factor VIII before I could proceed safely....
As we approach our one-year anniversary in our home in Las Cruces, New Mexico, I want to spend more time on our beautiful, shaded back patio. We just got a new flat-top griddle, wh...
For most of my life, “tired” was the only word I had, and it was never enough. I’d say it to doctors the way you’d mention the weather — a fact so ordinary it wasn’t worth writing...
The swimming pool was the best place to be for a young girl growing up in the hot Texas summers. I’d hand over my crumpled dollar at the counter and spend the whole day there. Afte...
There are events I know I should attend but talk myself out of. The Bleeding Disorders Foundation of Florida’s special Ladies Tea Luncheon has often been one of them. It’s not beca...
When I was in the fifth grade, I’d look in the mirror every morning and hate who I saw. I believed I was ugly, unpopular, and weird, and the hand-me-down clothes I wore made me loo...
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