Social Media Ideas for Caregiving Unfiltered – A Column By Crystal Onyema

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parkinsonsnewstoday.com /1 month ago

Finding balance between safety and dignity while caregiving for a loved one

As you probably know by now if you’ve been reading my column, my late uncle Brandon liked to stay on the move. His career involved hands-on work, building things from the ground up...

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parkinsonsnewstoday.com /3 weeks ago

Being reminded that my uncle was still in the room was an important lesson

As my late Uncle Brandon’s Parkinson’s disease progressed, my family became increasingly involved in helping him navigate appointments, medications, physical therapy, and everyday...

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parkinsonsnewstoday.com /1 week ago

It turned out Uncle Brandon didn’t need a cheerleader

Every family has its own way of showing encouragement. Mine definitely did. When someone in our crew cocoon did something hard, we celebrated. We told them we were proud, noticed t...

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parkinsonsnewstoday.com /1 month ago

The moment every caregiver dreads: When the patient has gone missing

As I’ve mentioned in previous columns, my family and I did our best to support my late uncle Brandon after he was diagnosed with Parkinson’s disease. We all pitched in, so there wa...

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parkinsonsnewstoday.com /1 month ago

Parkinson’s disease forced our family to say the quiet parts out loud

Faith has always been at the center of my family’s life. As I grew up, I saw my family face tough times, believing that God would help us through. Strength, prayer, perseverance, a...

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parkinsonsnewstoday.com /2 weeks ago

The day my uncle’s ‘I did’ proved to be louder than Parkinson’s disease

There are few things more humbling than confidently giving someone credit for a job they didn’t do. That’s what happened to my family when an Ikea table suddenly showed up, fully a...

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parkinsonsnewstoday.com /22 hours ago

My uncle’s cackle made his house feel like home

“I’m trying to shake it and not break it.” That was Uncle Brandon’s line. If his hands shook while he carried a plate, he would grin, say those nine words in his deep, gravelly voi...

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zentangle.com /1 month ago

Caring for Caregivers

Jen writes... It is the middle of the night, bleary-eyed, I am double-checking my spreadsheet to make sure I am giving the right medicines at the right time.It is the middle of the...

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multiplesclerosisnewstoday.com /1 week ago

Caregivers are like human assistive devices, but with feelings

As my disability from multiple sclerosis (MS) increases, so does my reliance on tools to assist me. Some are relatively simple mechanical devices like adaptive silverware, gloves t...

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parkinsonsnewstoday.com /1 month ago

Convincing Uncle Brandon to do his exercises was an exercise itself

If Parkinson’s disease had one ally in our household, it was my late uncle Brandon’s ability to avoid doing his home exercises. As I’ve mentioned before, Uncle Brandon was proud. H...

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parkinsonsnewstoday.com /4 weeks ago

The day NASCAR got a win over my uncle’s Parkinson’s disease

Throughout my late uncle Brandon’s journey with Parkinson’s disease, my family made sure he kept up with his physical therapy. At one point, we started seeing progress. His balance...

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msmagazine.com /3 weeks ago

I’ve Spent My Life Caring for Others. Who Cares for Caregivers?

Front & Center amplifies the voices of Black women navigating poverty—highlighting their struggles, resilience and dreams as they care for their families, build careers and cha...

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multiplesclerosisnewstoday.com /3 weeks ago

When caregiving feels like drowning, reaching for a lifeline is crucial

They say drowning is quieter than people expect. It rarely looks like the thrashing and shouting we picture from movies. More often it is silent, and the people standing right ther...

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hemophilianewstoday.com /2 weeks ago

When job stability became a form of caregiving

When I first started writing for Hemophilia News Today in 2018, I never imagined it would become part of my career. At the time, I was a young woman preparing for marriage and tryi...

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howlround.com /3 weeks ago

I Don’t Know How She Navigates the Long Haul of Freelancing, Caregiving, and Disability

By Artist Caregiver. This diarist freelances out of state, but this week she is at home beginning her daughter’s transition from educational services to housing for disabled adults...

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parkinsonsnewstoday.com /1 month ago

Reflecting on the many unexpected effects of being a Parkinson’s caregiver

My husband, Arman, who has early-onset Parkinson’s disease, and I don’t get to the movies very often. Instead, we prefer to wait and stream films from the comfort of home. But when...

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multiplesclerosisnewstoday.com /1 month ago

An MS caregiver’s dilemma: Do I stay or do I go?

Even with my husband, Rhead, living in an assisted-living facility, there are so many hard days when I become somewhat of a punching bag. One visit, he is light and funny, the vers...

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multiplesclerosisnewstoday.com /1 week ago

The hardest part of caregiving is being doubted by other loved ones

I used to think the disease itself would be the hardest thing I’d face as a caregiver. I was wrong. Some days, the heaviest weight isn’t my husband’s illness at all. It’s the peopl...

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scarymommy.com /1 month ago

I've Spent 10 Years Caregiving For Aging Family. Here's What I Know.

In this guest essay by Rachel Linden, the author describes what it's like being a part of the sandwich generation.

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bellanaija.com /1 week ago

Rita Chidinma: The Vulnerability Gap in Modern Motherhood

It was 10:47 p.m., and Amaka sat on the kitchen floor, crying. Her baby had been unusually fussy all day and had spilt juice on the freshly folded laundry. Dinner was late. The sin...

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multiplesclerosisnewstoday.com /1 month ago

MS caregiver burnout broke me before I knew its name

For years after my husband, Rhead, was diagnosed with progressive multiple sclerosis in 2019, I was working two full-time jobs, raising our six children, and caregiving for him aro...

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multiplesclerosisnewstoday.com /2 weeks ago

Naming abuse, intentional or not, in caregiver-patient relationships

Not long ago, I listened to a therapist who works closely with caregiver spouses say something that stopped me cold. Whether the person who is diagnosed means to or not, she explai...

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theblaze.com /2 weeks ago

The new kid in the waiting room

The receptionist asked me to verify my date of birth.I gave her Gracie’s.For years, I have encouraged fellow caregivers to pay attention to their own health rather than waiting unt...

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multiplesclerosisnewstoday.com /2 days ago

My husband has MS, but as a caregiver, this story is mine, too

Recently, after I shared some of the harder parts of caring for my husband, Rhead, a stranger left a comment on a recent column implying that I was simply monetizing his multiple s...

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