Social Media Ideas for Asean Declaration On Rare Diseases

<![CDATA[The New Capital of Care in Rare Disease]]>

Malaysia to champion people‑centred health reforms, global aid access at 79th World Health Assembly, says Dzulkefly

PUTRAJAYA, May 18 — Health Minister Datuk Seri Dr Dzulkefly Ahmad is in Geneva to lead the country’s delegat...

The Orphanet Nomenclature and Classification of Rare Diseases for Improved Patient Recognition and Data Interoperability...

Background: Although individually uncommon, rare diseases (RDs) collectively affect an estimated 329-624 million people worldwide. There are over 6500 known RDs, 85% of which affec...

Father of rare disease patient fears losing 'second son'

Patients with rare diseases and their families travelled to Leinster House to call for action on access to new medicines.

Asian doctors seek wider, more proactive TB testing

BANGKOK, Thailand — Doctors from Indonesia and Pakistan have called on nations to expand their testing capabilities for tuberculosis (TB) and make efforts to diagnose the disease m...

WHO members adopt global resolution on bleeding disorder care

At the World Health Assembly (WHA), member states of the World Health Organization (WHO) unanimously adopted a resolution on Global Action to Advance Health Equity for People with...

A genome-first multiomic approach to diagnosis

Did you know that one in 10 Americans have a rare disease and it can take five or more years, on average, for a person with a rare disease to get an accurate diagnosis? That’s more...

Is Rare Disease a good place to be?

Is Rare Disease a good place to be? Anonymous (not verified) Thu, 07/02/2026 - 06:06 field_thread_url https://cafepharma.com/boards/threads/is-rare-disease...

Nothing About Us Without Us: A Call for Inclusive Health at the 79th World Health Assembly

At the 2026 World Health Assembly, Pearl Lüthy, Special Olympics Switzerland athlete and World Winter Games Switzerland 2029 Athlete Ambassador called on health care workers around...

Is Rare Disease a good place to be?

Is Rare Disease a good place to be? Anonymous (not verified) Tue, 06/23/2026 - 00:01 field_thread_url https://cafepharma.com/boards/threads/is-rare-disease...

Hurdles persist for persons with rare diseases seeking disability certification

Sanofi and Wave post AATD updates in race to end genetic disease’s 40-year new treatment drought

Sanofi and Wave Life Sciences are using their time at the annual meeting of the American Thoracic Society in Orlando to share updated data for their next-gen attempts to treat a pr...

<![CDATA[The Regulatory Landscape for Rare Pediatric Diseases]]>

Africa: Why The World Must Recognize NTDs as a Human Rights Issue

[allAfrica] During my years working in Malawi's health system - from clinician and public health officer to leading national public health programmes, and now as Minister of Health...

Uncommon Cancers, Common Goals: Overcoming the Challenges of Rare Cancer Research

The cochairs of the AACR Special Conference on Breaking Barriers in the Fight Against Rare Cancers—Andrew Futreal, PhD, FAACR, of The University of Texas MD Anderson Cancer Center;...

<![CDATA[Addressing Prohibitive Costs for Rare Diseases]]>

Global collaboration on Kawasaki disease key to reducing risk of serious heart conditions, say experts

International collaboration in research, diagnosis, and care is critical to reducing the risk of serious heart conditions for children with Kawasaki disease worldwide, according to...

Bio-IT World Celebrates 25 Years with Opening Plenary on Rare Disease Challenges and Opportunities

Breaking from the traditional plenary format, Bio-IT World Conference 2026 opened with intimate discussions on the personal, scientific, clinical, and policy challenges shaping rar...

The FDA Opened the Door For Rare Disease Patients — Here’s What It Takes to Walk Through It

The Plausible Mechanism Framework is a breakthrough. Turning it into treatments that reach families will take five things the framework doesn’t provide. The post The FDA Opened the...

AI is detecting cancer earlier in Southeast Asia but our policies and capital have not caught up

Southeast Asia will see cancer cases rise by 70 per cent to 1.3 million new diagnoses annually by 2030. Cancer is already the region’s leading cause of death. Average treatment cos...

Sanofi, Pangaea ink AI partnership deal to detect underdiagnosed genetic disease

French biopharma Sanofi inked a partnership deal with Pangaea Data to use its AI platform that helps detect Alpha-1 Antitrypsin Deficiency (AATD) that will be distributed to select...

Malaysia, Singapore expand healthcare cooperation on food labelling, medical technology and health tourism

KUALA LUMPUR, May 20 — Malaysia and Singapore are strengthening strategic cooperation in healthcare, including foo...

AI Health Care in Southeast Asia

SEO KEYPHRASE: AI-Powered Healthcare in Southeast Asia META DESCRIPTION: AI-Powered Healthcare in Southeast Asia transforms access to care in remote communities with innovative, lo...

Nations Unite on a Historic WHO Pandemic Agreement

On May 20, 2025, diplomats from around the world voted almost unanimously in favor of the world’s first legally binding WHO Pandemic Agreement, in response to one of the most glari...